BXO aka Lichen Sclerosus

It's interesting the variety of problems that are improving with LOD.
* fibromyalgia (my problem)
* kidney stones
* autism spectrum disorders
* interstitial cystitis
* vulvodynia, lichen sclerosus, and related problems

Areas of reported change in our autism oxalate project

Digestive:

Improved gut function: digestion
Loss of chronic diarrhea
Loss of chronic constipation
First normal stools in lifetime despite previous medical treatment
Loss of ravenous hunger
Needed increase in appetite
Loss of food allergies or sensitivities
Eating foods previously avoided
Improved pancreatic function
Losing tendency to stomach ache or migraine
Loss of distended belly
Loss of dysbiosis and yeast problems
Ability to get off all GI medications because of healing
Big changes with introduction of VSL #3, an oxalate-degrading probiotic
Improved tolerance for sulfur foods or supplements
Improvements in reflux or esophagitis
Lost need for enzymes; or they started working differently
Big changes in toleration for lots of different supplements

Urinary:

Loss of excessive urination
Loss of urinary frequency
Obtaining nighttime continency
Obtaining daytime continency
Loss of vulvar or penis pain & inflammation
Movement:

Improved energy (mitochondrial?)
Vastly improved gross motor skills
Improved handwriting
Improved fine motor skills
Beginning to enjoy sporting activities with friends and siblings

Cognitive:

Increased imitation skills
Better counting
Better and more spontaneous coloring
Better sight word retention
Less rigidity
Better expressive language; losing apraxia
Better receptive language
Asking more questions: who, what, where
Improved cognition: more complex thought
Speaking in much longer sentences
Understanding cause and effect
Increases in imaginary play
Sociability
Developing negotiating skills
Playfulness: enjoying life; jokes
Calming of termperament

Other areas:

Loss of photosensitivity
Loss of self-abusive behavior
New ability to tell parent locations of pain
Rashes and bumps disappearing
Sleeping through the night
Loss of chronic leg and foot aches (growing pains)
Improvement in iron stores and anemia
Better phenol tolerance incl: no-phenol product started working
Loss of salt craving
Catch-up growth
Normalization of Wilson's temperature syndrome
Normalization of iodine levels
Loss of tic of swallowing air constantly
Loss of autistic gait
Improvement in acne in teenager



Other
Notes: "Oxalate dumping" is the theoretical explanation for symptoms; a fecal
test for oxalates has not been
available but may be soon.**

Some parents recognize the same symptoms occuring during illness as
occured after dietary infractions or when "dumping"

Some parents have noticed what may be "oxalate dumping" after HBOT.

Some children have had BIG trouble with return of symptoms on
chelating agents or on LDN.

There seem to be sporadic times of "dumping oxalates" while on the
diet and symptoms can be severe and similar to hyperoxaluria literature.

Oxalates impair carboxylase activity and may produce symptoms seen
in biotin or biotinidase deficiency.

Some women notice what they think are "oxalate" symptoms related to
monthly cycle

We have commonly heard of stool changes…white flecks; black flecks
during what may be "oxalate dumping".

Going completely low seems to be necessary to get the big
improvements.

**sco note:

We hope to confirm that this onset of symptoms is an issue that runs parallel to
the proven release of oxalates from the body that occurs in genetic
hyperoxaluria after the source of oxalates is removed by surgical removal of the
liver and replacement with a liver that does not generate excess oxalates. On
the far side of these times of purported "oxalate dumping" are some welcomed
improvements!

Areas improving in adult listmates

Improvement in hypertension
Alleviation of carpal tunnel problems
Loss of fibromyalgic pain
Cysts healed
Improved cognition
Loss of back pain
Loss of joint stiffness
Loss of heel pain
Weight loss
Improvements in libido
Monthly periods are starting back in women
Improvement in balance (cerebellar--per physician)
Regaining daytime urinary continence
End of severe insomnia