Protocol for Dissolving Biofilm

tiptoetulip wrote:
I have a new and emerging disease that most Drs. so not believe in, in fact, they say I am delusional.
I am wondering if there is anyone else in this forum who also has Morgellons disease and if so, how are they dealing with it?

Next time I post I will try and explain more as to what the symptoms for Morgellons are and just how bizarre and sci-fi this condition is.

Hello, I thought I would introduce myself now that I have had a chance to familiarize myself with this forum. My name is Kathy [edit] and I am from Lethbridge, Alberta, Canada.

My reason for joining the forum is that I have been searching for a successful Lyme disease treatment for my daughter. She was bit by a tick 14 years ago when we were camping in the Wisconsin Dells. I thought nothing about it as I did not know anything about Lyme disease at that time. After we arrived home back in Lethbridge I noticed that she had developed a strange rash on her arm that looked like a target. I took her to the family doctor who remarked that her rash looked like a target, but that her rash must some strange sort of ringworm. He prescribed some sort of ointment and her rash eventually disappeared.

I can understand that this could happen 14 years ago, but unfortunately, this is still happening in Lethbridge today. The Canadian doctors are falsely being told that Lyme is rare in Canada and so they are not being educated about clinical symptoms such as a bull-eye's rash. Thus people are not being identified or treated in the early stages. The only Canadians being treated must educate themselves, pay for their own testing through the Igenex lab in California (the testing in Canada is bogus), and then find a Lyme literate MD or ND (if they're lucky) and pay for their own treatment.

However, little did we know that this was the beginning of what has been a long journey of ill health. This daughter, who had always been the healthiest of our children, now developed a puzzling and ever increasing myriad of symptoms of ill health. She was midiagnosed with fybromyalgia, chronic fatigue, anxiety, skin lesions, finally culminating with "MS-like" brain lesions. Of course, the medical doctors only answer was to prescribe drugs - Lyrica, steroids, etc., which she wisely refused.

After researching her symptoms, both us kept coming up with Lyme disease. She was positive for Lyme disease through the Igenex lab this September, and as well was clinically diagnosed with Babesia, Bartonella, Ehrlichia, and Mycoplasma. She had 4 months of oral antibiotic treatment (Flagyl and Minocycline), but can no longer tolerate the antibiotics. As well, she has been using natural supplements and anti-microbials.

After talking with 4 other people in Lethbridge, all with similiar stories, of trying the oral antibiotic treatment, who all had to stop the antibiotics because their bodies could no longer tolerate it, and who all are "surviving" rather than "living" I am not willing to give up on my daughter. Perhaps IV antibiotics could be answer, but that is not available in Canada. That is why I am here at this forum. I am desperately searching for a Lyme story with a good ending - and that I have not yet found - till I read several stories here on this forum. After my disappointment (and now cynicism as to the profit motives, rather than health of the patient) with conventional medicine I have become quite open minded.

That is why I am on this forum. I am willing to spend to try a new technology and spend the money, but only after I have researched the information and the stories. There have already been so many routes that we have tried, that have not ended in success. I am hoping to hear your stories, and recommendations. I have read through much of the information and posts and am forming an opinion, but would love to hear from the rest of you and hear your recommendations!

I am ending with this quote from Jeremiah [edit] that sums up my experience with Lyme:



"What most people know — or think they know — about tick-borne diseases like Lyme disease could fit on the back of a deer tick.
And what its victims know about Lyme disease would fill a book — a book whose frustration and pain and hardship radiates out of its pages and into the lives of families and communities."



Truly you do not get it, until you or a loved one, literally gets it - Lyme disease that is. I get it, and I applaud all those suffering with Lyme disease, and your family and friends that are supporting you in this journey for you incredible courage in the face of a public that does not understand or sympathize.